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April 1, 2024
Safeguarding Brain Data: Assessing the Privacy Practices of Consumer Neurotechnology Companies
The 100-page report is the first ever report analyzing the data practices and user rights of consumer neurotechnology products. Neurotechnology refers to devices capable of recording or altering the activity of the nervous system, including the brain, spinal cord, and the peripheral nerves. Traditionally used within medical and research settings, neurotechnology devices are increasingly marketed to consumers. The report presents an initial assessment of privacy practices in the consumer neurotechnology space, analyzing the privacy policies and user agreements of 30 neurotechnology companies with products that can be purchased online. It benchmarks data practices against half a dozen global data protection standards to compare the handling of neural data with established global standards for handling other types of sensitive and personally identifiable data.
Jared Genser, Stephen Damianos, and Rafael Yuste